Mothering special Children
Wednesday, 20 November 2013
Friday, 8 November 2013
And then...
So much as happened over time I find it
hard to keep up with events. Caragh was fast approaching 14 and was becoming a
lost soul. I was finding it increasingly hard to understand her mind; she
needed friends at any cost yet school seemed to be horrendous for her, almost a
living nightmare. I would get a call from the school saying Caragh had not
turned up for school, but she was there just hiding as far away from everyone
as she could. School was too hard to face so she was using coping mechanisms,
albeit not very conventional.
About the same time Shannon was starting
senior school, her dyslexia was sever and I knew she would need a lot of help
to progress. The sad thing for both of my daughters was, they were both very
bright and talented for Caragh she seemed disadvantaged socially for Shannon she
was extremely shy used little eye contact, and had the dyslexia to boot.
Wednesday, 18 September 2013
Juggling
At
this time I was still working full time at the library and juggling with two
daughters that needed a lot of their moms attention and help. Shannon needed a
confidence boost, and Caragh needed help fitting in at senior school.
I
heard at work that Birmingham city council was staging children's poetry
competition, perfect for Shannon I thought. We had a few brain storming
evenings, before Shannon came up with her poem:
Dyslexia dearest
When I am at school I hate you
You make me feel so frustrated
Why did you pick on me?
Why couldn’t you pick on my other friends?
But when I’m doing music or art
You’re my hero
You have compensated me well.
Why couldn’t you pick on my other friends?
I wonder what it would be like free of you?
So I could spell and write perfectly
That would be a dream come true for me
Why couldn’t you pick on my other friends?
But if I had not been born dyslexic I would never have known how
it felt, don’t think I like you any better but at least I understand
Shannon
won the competition, which meant we all went for a slap up lunch. Shannon had
her photo taken with the poet laureate and Benjamin Zephaniah her little cheeks
went bright red she was so happy. Caragh got her own goody bag and looked like
a proud big sister, after the grand affair of the lunch we were invited as part
of Shannon’s prize to go watch Benjamin perform over at the library theatre. It
was a day to remember, for the three of us.
Thursday, 5 September 2013
Increasingly Worried
You would think after the
dyslexia diagnosis things would improve for Shannon, but alas little changed
and in a class of thirty-one Shannon was getting little support. Despite the
dyslexia, Shannon was showing a flair for writing. she loved to write scary stories.
Caragh had started ‘big
school’ by now and although started off well, she was struggling to fit in. She
had started to fall down the groups; while she was brilliant at English her
lack of concentration skills was making her slip behind. She was struggling
socially with her peers. She continued to have one really good friend but her
other choice in friends was questionable.
I was becoming concerned
for both of them, but didn’t know how to help. I was having constant meetings,
phone calls, and writing letters to the school. I did not know the signs of
autism, but I was getting increasingly worried for my children, as they were
struggling socially but in different ways.
The lack of help Shannon
was getting from school was exasperating me, we did lots of work at home, but
the dyslexia issue was just being ignored at school. Since no one else was
willing to help I took the matter into my own hands, and I decided to phone
around the Birmingham schools interviewing each head teacher over a matter
weeks. A lovely lady (Mrs. Percival) spoke so knowingly about dyslexia, that I
decided I would take Shannon out of her school and move her five miles away.
Two buses there and back each day was a strain, and knew this could not
continue.
Sunday, 1 September 2013
Loud voice quiet voice
No matter how hard I pushed, no matter what I did
there was always a “NO” blocking the way. There is still that thought, that
maybe I could have pushed a bit harder. When thinking of my children and their
childhood, I wonder if an early diagnosis would have changed things. Then I
question myself, If only I had known somehow, done more and pushed
harder...
Shannon by the age of six was showing signs of
dyslexia, which I could blatantly see; although her teachers did not agree with
me. Her father was severely dyslexic, and I at the age of thirty-six had also
been diagnosed, and knew what to look for, where it seemed the teachers knew
nothing. They said they had done a ‘ten point score sheet’ and found she was
fine. They believed ‘she was just a slow learner’ and ‘she was being a little
bit lazy with her words’. It was only after I had decided to get an educational
psychologist to test her that they agreed she was indeed dyslexic and she was
put on the special needs register.
Caragh had made a friend and was doing ok in junior
school; she was close to top of her class. I always felt that the world did not
make sense to Caragh because she always seemed puzzled by peoples’
behaviour. We used to play a game called inside voice/outside voice, to try and help her not talk so loud at home. Making friends was her
priority: she used to try desperately to be friends with her peers, at any
price.
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